Julie Jacobsen Deck

A collection of resources that my daughter and I have found useful and will perhaps help someone who is coping with or researching chronic/invisible illnesses.

Dysautonomia and POTS:

What is Dysautonomia? http://www.dysautonomiainternational.org/page.php?ID=34

http://www.dysautonomiainternational.org/

http://potsgrrl.blogspot.com/

http://www.dysautonomiainternational.org/page.php?ID=40 (Information for educators and classroom accommodations for children with Dysautonomia)

Natural Foods and Supplements to help heal POTS: http://www.medicalmedium.com/blog/pots

Lyme, Multiple Chemical Sensitivity, Chronic Illness:

How Did the Topic of Lyme Disease Get to Be So Contentious? (a great article for anyone wondering why lyme is such a debated topic and why “chronic lyme” is sometimes considered a controversial diagnosis. And perhaps why you shouldn’t trust every doctor’s opinion) www.lymeactionnetwork.org/news/topic-lyme-disease-get-contentious/

Why you shouldn’t rely on a routine negative lyme test: http://danielcameronmd.com/relying-on-a-negative-lyme-disease-test-can-prove-deadly/

Treatments/useful info for Babesia (lyme coinfection): https://suzycohen.com/articles/babesia-testing-and-treatment/

Herbal protocols for lyme and coinfections (how to treat without antibiotics): http://buhnerhealinglyme.com/

Exposure to cleaning products equivalent to smoking 20 cigarettes a day: https://draxe.com/home-cleaning-products/ Why you should avoid common household cleaners such as bleach (regardless of sensitivities)

https://allergictolifemybattle.wordpress.com/

http://it-takes-time.com/mold-microbes/beginners-guide-toxic-mold/

http://hybridrastamama.com/walking-away-from-toxic-mold-why-you-must-leave-everything-behind/

http://www.multiplechemicalsensitivity.org/

Type 2 Diabetes Triggers (environmental causes): https://draxe.com/diabetes-triggers/

http://mthfr.net/

http://www.ilads.org/

http://www.transgenderwarrior.org/lymeseries.html

http://globallymealliance.org/

http://ilads.org/ilads_media/physician-referral/ (ILADS physician referral)

Some people with POTS, Multiple Chemical Sensitivities, mold illness, and more have had great success with brain retraining programs (“Dynamic Neural Retraining System”- DVDs and/or seminars): https://retrainingthebrain.com/what-we-treat/

More Articles/Videos:

https://www.psychologytoday.com/blog/turning-straw-gold/201403/the-extra-burdens-faced-young-people-chronic-illness

https://www.psychologytoday.com/articles/201109/the-incredible-expanding-adventures-the-x-chromosome

https://www.ted.com/

Random Tips:

http://wellnessmama.com/5107/raspberry-leaf-herb-profile/ Raspberry Leaf tea is a game changer for PCOS- it helps during painful cramps way more than harmful pain killers! Traditional Medicinals brand is the best.

Essential oils– even with chemical sensitivities, organic natural essential oils are usually tolerated despite their strong smell (because they are extracted from plants and do not contain any synthetic chemicals unlike perfumes or other scented products). Rosemary oil works very well for joint pain (even the kind caused by lyme!). Peppermint oil cools and soothes muscle spasms. (Be sure to mix these with a carrier oil before applying on your skin). Tea tree oil helps kill mold, use in laundry and homemade cleaning sprays along with distilled vinegar (vinegar is also a great alternative to chemical-laden dryer sheets. And don’t worry, the scent dissipates completely once dry!)

 

Books:

Barbara Ehrenreich Bright-Sided: How Positive Thinking is Undermining America.

Richard Horowitz, Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease  AND How Can I Get Better: An Action Plan

Jodi Epstein Rhum, POTS – Together We Stand: Riding the Waves of Dysautonomia

Alejandro Junger, Clean Gut and/or Anthony William, Medical Medium (using simple, whole foods to heal and find root causes of illness)

Jon Kabat-Zinn, Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain, and Illness

 

*These links are simply resources that  I’ve found helpful and informative. I do not own nor am I associated with the organizations above.  The opinions about products/books are my own, I have not been paid to endorse or advertise anything.