Julie Jacobsen Deck

A collection of resources that my daughter and I have found useful and will perhaps help someone who is coping with or researching chronic/invisible illnesses.

Ehlers Danlos Syndrome

What is EDS? And the different types: https://www.ehlers-danlos.com/what-is-eds/

A list of comorbid conditions of EDS: https://www.eds.clinic/articles/ehlers-danlos-syndrome-comorbidities

hEDS diagnostic criteria: https://www.ehlers-danlos.com/heds-diagnostic-checklist/

Dislocation/Subluxation Management: https://www.ehlers-danlos.com/dislocation-subluxation-management/

MCAS (Mast Cell Activation Syndrome)

What is MCAS? https://www.aaaai.org/conditions-treatments/related-conditions/mcas

Symptoms and Triggers: https://tmsforacure.org/signs-symptoms-triggers/symptoms-and-triggers-of-mast-cell-activation/

Dysautonomia and POTS:

https://thedysautonomiaproject.org/dysautonomia/

http://www.dysautonomiainternational.org/page.php?ID=34

https://www.ehlers-danlos.com/dysautonomia/

More Articles/Videos:

https://www.psychologytoday.com/blog/turning-straw-gold/201403/the-extra-burdens-faced-young-people-chronic-illness

Books:

Barbara Ehrenreich Bright-Sided: How Positive Thinking is Undermining America.

Diana Jovin (Editor) Disjointed: Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders

*These links are simply resources that  I’ve found helpful and informative. I do not own nor am I associated with the organizations above.  The opinions about products/books are my own, I have not been paid to endorse or advertise anything.