I know I haven’t written in a long time, and there’s a reason for that which I will explain in my next post. In the meantime, this is a post that I wrote in January of 2017 and now realized that I never published it, so here it is… My last post strayed from the … More Not Allergic to Mold
It’s difficult to find resources and support when you are young and chronically ill. There are lots of blogs, if you can find them, but even then, it’s hard to find someone who has the same diagnoses and severity of symptoms, AND a similar life story. The most common story you read in blogs and books … More Young and Chronically Ill
People living with dysautonomia have malfunctioning autonomic nervous systems, which can result in a myriad of symptoms such as fainting, unstable blood pressure, abnormal heart rates, severe gastrointestinal distress, cognitive impairment (“brain fog”), neuropathy (nerve damage), extreme fatigue, low blood volume, blood pooling in the extremities, and even in severe cases, death. Basically the autonomic nervous system controls … More About Dysautonomia
I recently read the 2011 second edition of Barbara Ehrenreich’s and Deirdre English’s book, Complaints and Disorders: The Sexual Politics of Sickness. I highly recommend it for its eye-opening view of women’s medical treatment from about 1865 to 1920. The authors self-published their “pamphlet” in 1973 and I was upset reading their last chapter concerning … More Thoughts about Women’s Medical Treatment in the United States
As I wrote in my first blog entry, my book is a work of fiction. The main character is not as sick as my daughter. I didn’t want to overwhelm readers with too many symptoms and conditions, so I gave Drea only two syndromes, which still provided enough symptoms to portray the experiences of a … More Doctor Appointments
Julie Jacobsen Deck 