Postural Orthostatic Tachycardia Syndrome (POTS) POTS is a form of dysautonomia. What is Dysautonomia? Read more about dysuatonomia here The disabling symptoms caused by POTS are similar to living with congestive heart failure. Some POTS patients have had symptoms since birth, but most patients were active and healthy until something triggered a sudden onset of POTS. The … More More About Dysautonomia: POTS
People living with dysautonomia have malfunctioning autonomic nervous systems, which can result in a myriad of symptoms such as fainting, unstable blood pressure, abnormal heart rates, severe gastrointestinal distress, cognitive impairment (“brain fog”), neuropathy (nerve damage), extreme fatigue, low blood volume, blood pooling in the extremities, and even in severe cases, death. Basically the autonomic nervous system controls … More About Dysautonomia
I recently read the 2011 second edition of Barbara Ehrenreich’s and Deirdre English’s book, Complaints and Disorders: The Sexual Politics of Sickness. I highly recommend it for its eye-opening view of women’s medical treatment from about 1865 to 1920. The authors self-published their “pamphlet” in 1973 and I was upset reading their last chapter concerning … More Thoughts about Women’s Medical Treatment in the United States
As I wrote in my first blog entry, my book is a work of fiction. The main character is not as sick as my daughter. I didn’t want to overwhelm readers with too many symptoms and conditions, so I gave Drea only two syndromes, which still provided enough symptoms to portray the experiences of a … More Doctor Appointments
Perhaps you’ve heard this from family, friends, acquaintances, or coworkers, (that is if you are able to work). Or maybe you’ve progressed to the point where people don’t even ask how you are because they don’t want to deal with your answer. Maybe they don’t believe you, or maybe they don’t know what to say … More Why I Wrote “You’re Still Sick?”
Julie Jacobsen Deck 